- British Dietetic Association
- FOD (Fatty Acid Oxidation Disorders) Family Support Group
- UC and CHRON's
- Oley Foundation
- Canadian Parenteral-Enteral Nutrition Association
- American Society of Parenteral and Enteral Nutrition
- National Reye Syndrome Foundation
- National Organization for Rare Disorders (NORD)
- National Institutes of Health Office of Rare Diseases
- European Organisation for Rare Disorders
- ¿ Alguna pregunta ?
- secretaria@seinap.es
